Well, as I type, Lydia is under a general anasthetic and having her fixator removed! I have a pager so I am ready to go and see her as soon as it starts bleeping and flashing!
It has been a while since I last wrote so here's the update. Since we returned to California, Lydia has had to have 5 therapy sessions a week, with Memi to try and increase her knee bending/knee straightening range. Unfortunately, busy family life has proved too much for me, and so the exercise regement that I took on with Lydia in Baltimore, to help reinforce the ground gained by the therapist fell by the way side when we were back home. It doesn't help that it is emotionally gruelling to hear her shout/cry out with pain and when there is so much else to do....well need I say more. I'm so sorry Lydia. There have been many moments on this journey where I have wondered whether we took the right path. Maybe the option to amputate her left foot and fit a prosthetic which makes up the leg length, would have been the kinder option. I honestly don't know, all I do know is that if I had to start this journey again and I truely knew what Lydia and I were up against with the lengthening, I would probably take her down the amputation route. Her leg is so stiff, her knee hardly bends and causes her so much pain. I don't know if she'll ever get her range back , especially with me not being tough enough with her. Tough love they call it and it is so true....
Sorry this hasn't been very positive.
2 comments:
Dear,
She is young, you'll are stressed, and it will all work out. You have SO MANY people sending kind wishes your way, and we all know from real-world experience that kid's bounce, moms fret, and love heals all.
Hi Christina and Tim
I am so glad to hear that the fixater is off and Lydia is through the surgery. My name is Lizzie and I also have twin girls the same age as yours. Paddy has FH in her right leg and we went down the amputation route in May, it is not an easy decision either way! It is such a relief isn't it when they wake up. Hang in there and our thoughts are with you.
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